Recent Episodes
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#BeyondHAE Podcast: Young Advocates on Capitol Hill Fighting for Rare Disease Policy
May 1, 2025 – 00:21:49 -
#BeyondHAE Podcast: A Letter to my 10 year old Self
Mar 4, 2025 – 00:15:36 -
#BeyondHAE: Meet 2024 Social Media Interns - Jason and Tyler
Feb 28, 2025 – 00:08:59 -
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Kaylee and Kiarra
Feb 14, 2025 – 00:09:50 -
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Kati and Ella
Feb 3, 2025 – 00:10:59 -
#BeyondHAE: Meet the Newest Members of the HAEA's Youth Leadership Council Cassidy and Skylar
Jan 31, 2025 – 00:09:58 -
#BeyondHAE: Meet 2024 Social Media Intern - Kailani
Jan 17, 2025 – 00:10:00 -
#BeyondHAE: Meet HAEA Youth Leadership Council Members - Caroline and Avery
Jan 10, 2025 – 00:09:05 -
#BeyondHAE: Meet the HAEA's Youth Leadership Council's Newest Member Sully
Dec 30, 2024 – 00:10:41 -
#BeyondHAE Podcast: A Day in the Life - Jasmeen's Journey of Resilience
Nov 4, 2024 – 00:18:23 -
#BeyondHAE BONUS Episode: Empowering Youth Voices: Ally & Luke's Journey in Legislative Advocacy
Oct 1, 2024 – 00:17:50 -
#BeyondHAE: A Day in the Life of Zach
Aug 30, 2024 – 00:16:09 -
#BeyondHAE Podcast: A Day in the Life of Sanyu
Jul 1, 2024 – 00:28:53 -
#BeyondHAE Podcast: A Day in the Life of Caregiver Kailani
May 1, 2024 – 00:23:51 -
#BeyondHAE Podcast: A Day in the Life of Caroline
Mar 4, 2024 – 00:15:11 -
#BeyondHAE Podcast: A Day in the Life of Bryn
Dec 29, 2023 – 00:27:12 -
Sponsored by BioCryst: HAE, the holidays and you. Navigating the holiday season with HAE
Dec 19, 2023 – 00:07:22 -
#BeyondHAE Digging Deeper Interview Series: The Parent Perspective (Nikia)
Nov 1, 2023 – 00:25:23 -
#BeyondHAE Digging Deeper Interview Series: Overcoming Barriers to Pursue A Passion for Filmmaking (Natalie)
Aug 30, 2023 – 00:38:21 -
#BeyondHAE Digging Deeper Interview Series: Studying Abroad with HAE (Nathan)
Jul 1, 2023 – 00:18:21 -
#BeyondHAE Digging Deeper Interview Series: My caregiver journey (Eliana)
May 1, 2023 – 00:25:14 -
#BeyondHAE Digging Deeper Interview Series: I am a young adult with HAE (Mariel)
Feb 27, 2023 – 00:26:22 -
#BeyondHAE Digging Deeper Interview Series: My brother has HAE (Avery)
Dec 30, 2022 – 00:14:14 -
#BeyondHAE: HAEA Round Table: Young Adults (Kayla, Jack, and Morgan)
Dec 2, 2022 – 00:39:15 -
#BeyondHAE: My HAE Diagnosis and Management Journey (Ally)
Oct 31, 2022 – 00:07:57 -
#BeyondHAE: Commemorating HAE Youth Advocacy Month with a talk about advocacy and awareness
Sep 28, 2022 – 00:13:52 -
#BeyondHAE: Preparing for Back to School (Lisa & Hannah)
Aug 31, 2022 – 00:09:48 -
#BeyondHAE: I Use Social Media to Advocate for HAE (Maddie)
Aug 1, 2022 – 00:03:58 -
#BeyondHAE: HAEA Round Table: Anxiety, Stress, and Growth with HAE
Jul 1, 2022 – 00:25:11 -
#BeyondHAE: Managing my HAE in Middle School (Paige)
May 31, 2022 – 00:05:45 -
#BeyondHAE: HAEA Round Table: How Does It Feel to Be a Kid with HAE?
May 2, 2022 – 00:20:12 -
#BeyondHAE: An Interview with Lisa Facciolla (Sydney & Lisa)
Mar 28, 2022 – 00:08:14 -
#BeyondHAE: Learning to feel comfortable with my condition (Zanya)
Feb 28, 2022 – 00:09:04 -
#BeyondHAE: HAE and Dating (Kelsey and Matt)
Jan 31, 2022 – 00:08:49 -
#BeyondHAE: The first in my family with HAE (Kira)
Jan 3, 2022 – 00:06:43 -
#BeyondHAE: Finding Comfort in Community (Jess and Hannah)
Nov 30, 2021 – 00:19:15 -
#BeyondHAE: How Advocacy and Awareness Has Impacted My Life (Emma)
Oct 29, 2021 – 00:04:47 -
#BeyondHAE: Moving Away for College (Kobe)
Oct 4, 2021 – 00:08:37 -
#BeyondHAE: Never Give Up (Karissa)
Sep 1, 2021 – 00:08:43 -
#BeyondHAE: Living #BeyondHAE with the HAEi Youngsters (Nanna, Erini, Isabel, and Nevena)
Aug 4, 2021 – 00:19:49 -
#BeyondHAE: How I Support Team Jack (Ally)
Jun 30, 2021 – 00:03:39 -
#BeyondHAE: We are Caregivers (Ava)
Jun 1, 2021 – 00:06:16 -
#BeyondHAE: Understanding Anxiety (Carlie)
Apr 30, 2021 – 00:04:52 -
#BeyondHAE: Chat with my Mom: Managing Life's Changes (Sophie)
Apr 5, 2021 – 00:12:08 -
#BeyondHAE: Modern HAE medication has allowed me to live #BeyondHAE (Sophia)
Mar 2, 2021 – 00:07:34 -
#BeyondHAE: Interview With My College Roommate (ReyJeanne)
Feb 1, 2021 – 00:12:14 -
#BeyondHAE: 5 Years Can Make a BIG Difference (Luke)
Dec 30, 2020 – 00:04:40 -
#BeyondHAE: My Emergency Room Experiences (Jack)
Nov 30, 2020 – 00:03:41 -
#BeyondHAE: HAE and Sports (Noah)
Oct 30, 2020 – 00:05:05 -
#BeyondHAE: Talking to friends about HAE (HAEA YLC)
Oct 30, 2020 – 00:08:05
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